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"May 19th is World IBD Day. IBD stands for inflammatory bowel disease, and is about as fun as it sounds. Specifically, it includes the Crohn's disease and ulcerative colitis. Two permanent conditions for which there is no known medical cure that works for certain, no proper known cause, and very little support for the people suffering from it.
It's hard to get funding for research when people don't want to even mention the disease, and it's often considered "rude" or even "taboo" to suffer from something, that means you might have to spend a lot of time on (or near) a toilet. Imagine having to explain to your class mates or co-workers that you have no energy, because you're loosing both blood and pretty much everything you eat every day, with no time to really get that energy back. Oh, and you need to stay within one minutes walk of an unoccupied toilet to feel comfortable. That's what it's like to have an IBD when the disease is bad. And for those that are really unlucky, this is every day, every week and every month of the year.
IBD usually hits young people between age 15 and 35, but can also hit children or older people. 1 in 200 people in the US are estimated to suffer from it, meaning you statistically know at least one person that's affected. Last year, it became apparent that a lot of Aywas users suffers from either IBD, IBS, celiac disease or something similar. Please feel more than welcome to share your stories with other users in the comment here, and know that you are not alone."
The item will be stocking in Trash for Treasure until May 22nd.
Posted by Eve
(#2775) on Thu May 19, 2016 4:18pm
- ♎ Astra ♎
(#16365)
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Posted on: Fri May 20, 2016 12:56am
"Something inflammatory" hah. XD Sadly, yes, I suffer from one of these... I mean, I suffer, but they can't find the cause, everything comes up negative. So I gave up trying to get it diagnosed (sticking with "non-celiac gluten sensitivity" even though more than just gluten bothers me) and started focusing on changing my diet.
If you can afford it, eating only whole foods and avoiding the processed stuff helps a lot. I'm off gluten and cow dairy. Sticking with fruits, veggies, and meat. Look up the Paleo diet. It's not intended to help anyone lose weight like many people think of the word "diet," it's simply changing the way you eat to something that's easier on your digestive system.
Another thing I want to point out is that I had a severe Vitamin D deficiency when all my digestive problems took a turn for the worse. Get your blood tested and if you're deficient, go on Vitamin D3 supplementation till you get it back up to a healthy range. It's not really a vitamin but a hormone that affects how many systems in your body work!
- FennecTECH
(#57779)
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Posted on: Fri May 20, 2016 2:14am
been there done that
- Revie (Inactive)
(#35743)
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Posted on: Fri May 20, 2016 2:18am
Gwennafran (#22320) Thanks for making this item!
I suffer from IBS and had serious problems with it for 2 years, to the point where I stopped going out and stopped eating. I can only imagine how horrible cronhs and IBD are, but its good to see people raise awareness and working to break the taboo around bowel related illness.
Thanks again for such a great item!
- Gwennafran
(#22320)
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Posted on: Fri May 20, 2016 4:46am
I always feel like hugging everyone while reading through these comments. I really hope everything will work out for the better for all of you.
- Suutashi
(#31830)
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Posted on: Fri May 20, 2016 5:48am
I think it is wonderful thing you're doing, Gwennafran, by helping to raise awareness for IBS. I know a sweet natured young man that works in the same store I do who has Crohn's Disease. You'd never know it unless he told you because of his exceptionally good attitude and hard-working nature.
- Tatsu
(#1694)
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Posted on: Fri May 20, 2016 6:19am
Tequila Mockingbird (#64472). Pancreatitis is caused by an excess of fat in the liver. Usually fat animals who don't eat for a couple of days get an accute case, since all the stored fat goes directly to the pancreas. (At least in the case of cats). There is also the case where an animal might eat fatty foods and the excess fat goes to the pancreas, overwhelming it.
And, pancreatitis can be deadly in both cases. If it's an ongoing case, any falre up might finish the animal in two days or so. They don't get they must still eat, even if they're feeling horrid. I've had to assist feel Cali during her first three weeks after surgery. Fortunately, she's eating on her own and is as normal as can be.
- Tatsu
(#1694)
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Posted on: Fri May 20, 2016 6:21am
Tequila Mockingbird (#64472). Pancreatitis is caused by an excess of fat in the liver. Usually fat animals who don't eat for a couple of days get an accute case, since all the stored fat goes directly to the pancreas. (At least in the case of cats). There is also the case where an animal might eat fatty foods and the excess fat goes to the pancreas, overwhelming it.
And, pancreatitis can be deadly in both cases. If it's an ongoing case, any falre up might finish the animal in two days or so. They don't get they must still eat, even if they're feeling horrid. I've had to assist feel Cali during her first three weeks after surgery. Fortunately, she's eating on her own and is as normal as can be.
- Fwipfwip
(#15798)
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Posted on: Fri May 20, 2016 7:51am
Since my mom has ulcerative colitis this was a near instant pick up, so thank you. She's been doing fine for a long while in that department at least [stroke 5 years ago that led to epilepsy is the major concern lately]
I am fighting nowhere near as hard a battle, but after popcorn skin getting wedged so far up my gum I couldn't even tell what was inflaming it [doctor could not either] I was put on a heavy antibiotic dose that has left me with a crippled digestive colony ever since. I can be fine for weeks and then I'll eat something or do something to disturb it again and nothing will stay long. And with social anxiety that often leads to even more stomach tightening and twisting, it makes those times at work or family events all the more fun. So as well as family I understand some of the symptoms more personally as well.
- Arinaya Rutherford
(#34865)
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Posted on: Fri May 20, 2016 9:32am
My daughter suffers from it daily. As in, it's difficult to go anywhere fun because she never knows when she's going to have an intestinal blowout, as she calls it. On one occasion while I was at the doctor getting a treatment for chronic myofacial syndrome ( that's where muscle groups constantly spasm in the most painful way possible - to the point you can actually see them jerking beneath the skin ), she had to leave ten minutes in on a thirty minute procedure to go to the bathroom. By the time I was finished, another thirty minutes had gone by and she still hadn't returned. I went to the only bathroom in the place ( it's a small patient center they're stuck in until their new building is finished being constructed ), and knocked on the door. There was a gentleman there waiting to take a urine test, and I told her about it. She reluctantly emerged a few minutes later, crying because of the smell she'd left for the man, and begged me with her eyes to hurry her home, which I rapidly did. I hadn't even turned the car off when she made a dash for the door, keys in hand, and raced over the animals to get to the bathroom. She was so embarrassed that she didn't want to go back there with me the following week for another treatment. She was afraid they'd make fun of her (as she'd been severely bullied for it in elementary school ) or give her a nasty look for it. I convinced her they wouldn't, as they're aren't like that, and she finally agreed. When we got there the following week, they asked how she was doing and were genuinely concerned for her.
It's a condition she's lived with since she was seven, and was bullied mercilessly for it. Even her teachers were unsympathetic to her, insisting she was just looking for an excuse to get out of class. By the time she was in seventh grade, she just couldn't handle it anymore. I had to pull her from public school and start home schooling her just so she could continue her education. People are cruel to those with IBS, or IBSD, as she has, when they should be made aware of how severely their harsh words and cruel glances affect people with these diseases. It's not a game, or an excuse, it's a self crippling disease that destroys the person's personal value.
Same with people that have celiac disease. It makes you look as though you intentionally vomit and are bone thin. There's nothing those people can do about their disease, and suffer nutritionally because there's very little they can actually eat. It's not a joke, and creates a very cruel opinion from others as to why you are the way you are. If only people were aware, and understood the personal shame that people like this carry for suffering something well beyond their control, perhaps they'd be a little more sympathetic towards them...
Posted on: Fri May 20, 2016 12:21am
I already had severe digestive issues from food insensitivities, but then I was diagnosed with ulcerative colitis. The pain and bleeding was so bad, and I had lost so much weight from a horrible flare that I was doing everything in my power to hide from everyone that I ended up collapsing and spending two months in the hospital (and on an unofficial hiatus) on iv nutrition to try to give my intestines a break and make sure I didn't die or anything.-Theron