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"May 19th is World IBD Day. IBD stands for inflammatory bowel disease, and is about as fun as it sounds. Specifically, it includes the Crohn's disease and ulcerative colitis. Two permanent conditions for which there is no known medical cure that works for certain, no proper known cause, and very little support for the people suffering from it.
It's hard to get funding for research when people don't want to even mention the disease, and it's often considered "rude" or even "taboo" to suffer from something, that means you might have to spend a lot of time on (or near) a toilet. Imagine having to explain to your class mates or co-workers that you have no energy, because you're loosing both blood and pretty much everything you eat every day, with no time to really get that energy back. Oh, and you need to stay within one minutes walk of an unoccupied toilet to feel comfortable. That's what it's like to have an IBD when the disease is bad. And for those that are really unlucky, this is every day, every week and every month of the year.
IBD usually hits young people between age 15 and 35, but can also hit children or older people. 1 in 200 people in the US are estimated to suffer from it, meaning you statistically know at least one person that's affected. Last year, it became apparent that a lot of Aywas users suffers from either IBD, IBS, celiac disease or something similar. Please feel more than welcome to share your stories with other users in the comment here, and know that you are not alone."
The item will be stocking in Trash for Treasure until May 22nd.
Posted by Eve
(#2775) on Thu May 19, 2016 4:18pm
- Darchaliath
(#56121)
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Posted on: Thu May 19, 2016 6:37pm
Ibs with it, darn auto correct
- ♥Ren & Val♥
(#4118)
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Posted on: Thu May 19, 2016 7:02pm
I've sufffered from IBS for 14 years and that's bad enough, but my uncle has suffered from IBD, specifically Crohn's Disease for as long as I can remember. Watching the person who was my hero growing up as he rolled around on the floor in pain, as he shrank almost literally before our eyes because he just couldn't eat... I wouldn't wish that on anyone. His medication controls the issues now, he can eat and isn't in danger anymore, but I will always appreciate when people make some sort of awareness of these kinds of conditions. So thank you for acknowledging these people and the things they deal with.
~Clove
- wolfsgazeinthenite
(#32012)
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Posted on: Thu May 19, 2016 7:10pm
Thank you to Gwennafran for making this item. My dad has crohns. He had to leave a very successful career that he loved as a mechanic and go on disability because the activities that job required of him aggravated the disease. He has had to go through so many surgeries and has gone through many complications because of it. So many things (including his cancer treatments) have had to revolve around his crohns.
- Tatsu
(#1694)
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Posted on: Thu May 19, 2016 8:30pm
Oddly enough, my cat suffers from IBD and pancreatitis. She takes meds every day, but might have relapses during the rest of her life. She takes nausea, pain relievers and corticoids several times a week. Whenever she has an episode, she'll stop eating for days, which gives her pancreatitis
- Frostfall
(#38271)
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Posted on: Thu May 19, 2016 8:31pm
It sounds like a lot of people have it worse than me with symptoms so far. I've been able to find some food I can eat without nausea, pain, and much bathroom trips, but that list of food keeps getting smaller. Add that to lactose intolerance that isn't helped enough by lactaid, a lot of allergies, acid reflux, and diabetes, it's very very hard to find anything I can eat without hurting myself. Food events at work usually consist of nope, can't eat anything here.
- Feuerqueen
(#3007)
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Posted on: Thu May 19, 2016 8:50pm
Both, my sister and brother suffer from Morbus Crohn. They were both aged 18/19 when they got it. My sister got it first and it took ages for the doctors to find out what was actually going on with her. :( She spent many weeks in the hospital and was only 48 kg at the worst point. Luckily they found a therapy that helped her so she feels much better now. My brother had more "luck" because they just applied the same therapy they used for my sister straight away, so he didn't had to go through all the different therapies.
I feel bad that I am the only one "who got away" and I constantly freak out when I have digesting problems or pain in my abdomen. They still don't know it it is genetical or not but either way I have a higher risk as I grew up the same way as my siblings AND have similar genetics. So I constantly "waiting" for it...
I wish I could do anything to help them but I can't. Then again - I am so, so happy that they found something that makes it possible for them to live an (almost) normal life.
- slothful
(#64472)
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Posted on: Thu May 19, 2016 11:17pm
Tat (#1694) wow, your cat is a real trooper! o: My uncle's dog ate like 5 or 6 marinating chicken breasts (and was old, overweight, and had doggy type 2 diabetes) and got a case of acute pancreatitis which did him in :C. My uncle was so upset. this is the firs time he didn't go out and get another dog... Though my aunt might have something to do with that... This past dog was not the nicest and was quite a bully with kids and now they have 4 grandaughts ranging from like 1 to 6 sooo... ..
But yeah... I didn't know pancreatitis was caused by not eating though. I actually don't know much about pancreatitis, only that my uncles dog died from it and that a family friend was suspected of having it but turned out to be a bad gallbladder instead.. but that could have actually lead to actual pancreatitis if gallstones were to form due to it... he got his gallbladder removed though and as long as he avoids gorging on high fat content foods, he's been doing a ton better... but before they removed the gallbladder.. he was in pain after almost every meal and went from a healthy weight to get scarily skinny....
thus, it seems pancreatitis is a bit of a double edged sword than because if animals eat certain foods (usually people food that is high in cholesterol/fats and a large amount) that can cause an acute case... which tends to be deadly in animals (at least it's more scary when happening to an animal than a person, though it could kill a person as well D: )... I'm guessing the kind that occurs after not eating for an extended period of time is not as deadly. Though , to note, also makes more sense for it to occur when not eatting imo as pancreatitis is basically digestive enzymes starting to do there thing before they are supposed to (basically before they get into the small intenstines which would be the healthy place for it to happen...
...but man, i'd probably just die the moment my pet would have an attack even if there were to be a good chance of survival or it has been okay and been through it before. I'm super paranoid and highly anxious so I'd just go "oh no this it is it this is the end i'm not ready *passes out*". I commend you and your cat's bravery ; o; Hopefully the cat doesn't need shots.. I know someone whose cat has basically type 1 diabetes and has to get a shot every day... they literally have to like do it a certain way and be quick, fast, and accurate as giving a cat a shot when they aren't sedated is pretty risky business... >_>
/is both a morbid nerd fascinated with diseases and an animal lover... and it must be tough with a sick animal because I know when my dog is upset or scared he comes to use to "make it go away" (e.g. thunderstorms) and of course sometimes it's just not possible.. human beings are much easier to successfully comfort ...
- Mostly gone
(#58780)
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Posted on: Thu May 19, 2016 11:54pm
Gwennafran (#22320) your awsome always doing these.
- SandTiger
(#21192)
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Posted on: Fri May 20, 2016 12:07am
Did I mention I love this site? Well, I do. My spouse has something that gives her symptoms that have things in common with UC and IBD both, so I can at least wholeheartedly sympathise!
Posted on: Thu May 19, 2016 6:33pm
I have it. I was diagnosed at 8. Was hospitalized then and again at 9. I went through mini flares after those two massive ones, where i could not even drink water. My mom only told me a few years ago, i almost didnt make it. I was so dehydrated, iv's wouldnt stay in. Now I've been in remission since then, I am now 28. I also have is with it. I have has many 'family' doctors say I don't have it, since it's not 'permanent'. Wrong, it is permanent, they did a biopsy. Mine is where you can't see it with 'normal' tests, it us on the outside, middle of my small intestine. It causes a stricture that won't let anything pass. It is fairly normal to go into remission for 10 years, just because I am 'abnormal' yet again, doesn't mean I don't have it. The doctor that found it, is one of the best doctors in existence. Dr. Squires. He is in Pittsburg now and is head over the same thing, including liver transplants for kids.