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"May 19th is World IBD Day.
IBD stands for inflammatory bowel disease, and is about as fun as it sounds. Specifically, it includes the Crohn's disease and ulcerative colitis. Two - permanent - conditions for which there is no known medical cure that works for certain, no proper known cause, and very little support for the people suffering from it, as it's "rude" or even "taboo" to suffer from something, that means you might have to spend a lot of time on (or near) a toilet. Imagine having to explain to your class mates, that you have no energy, because you're loosing both blood and pretty much everything you eat every day, with no time to really get that energy back. Oh, and you need to stay within one minutes walk of an unoccupied toilet to feel comfortable. That's what it's like to have an IBD when the disease is bad. And for those that are really unlucky, this is every day, every week and every month of the year.
IBD usually hits young people between age 15 and 35, but can also hit children or older people. 1 in 200 people in the US are estimated to suffer from it. If you all do the math, it means that there statistically are Aywas users suffering from this as well. So wear the little hair clip for support the people that might be too shy - or even embarrassed - to explain about their unique daily challenges."
This item will stock in Trash for Treasure until 11:59pm May 26th.
Posted by Eve
(#2775) on Mon May 18, 2015 11:52pm
- Arinaya Rutherford
(#34865)
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Posted on: Tue May 19, 2015 8:53am
My 16 year old daughter has been suffering from this for the past 7 years. It's not fun and while Crohn's makes you lose weight, ulcerative colitis can make you GAIN weight, simply because you're so swollen in your lower abdomen that you just can't do anything about it. And sleepy? Yeah, it's a constant with her. She has to be home schooled because she just doesn't have the energy to stay awake for the 9 hours required for public school. It's horrible to see a child her age unable to go out and make friends or ENJOY the friends she has because she simply has no energy. Let's help these people and support them. It's nothing to be ashamed of and society needs to take a step back. What if it was THEM, you know? Thanks for doing this, guys.
- Tony Wolf
(#4665)
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Posted on: Tue May 19, 2015 8:59am
My husband was diagnosed with Crohn's last fall, after having multiple other health issues. It's hard for him to not be as active or able as he was before. It had been a learning experience fire me too, learning what kinda of foods I can make without upsetting his digestive system. From some of the stories mentioned here, it doesn't sound like he is as bad as others, so I'm grateful for that. I feel for you all, it is such a hard thing to deal with.
- moved to 46529
(#67035)
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Posted on: Tue May 19, 2015 9:28am
i personally suffer from IBS and I have a friend who has celiac disease and so we are both constantly dealing with issues like this. it's so embarrassing when I have to all of a sudden leave the classroom because of my IBS and then be questioned (gently or not) if I'm okay. Cause I don't want to just be like "oh yeah my guts hate me now and I often have to rush to the bathroom so I don't crap myself." and the added source of fatigue doesn't help when I have already suffered from it my whole life.
siiiiighh
IBD/IBS suck
- Azremodehar
(#58221)
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Posted on: Tue May 19, 2015 9:40am
Thank you so much for this! Crohn's runs in my family, and it's taken a nasty toll on several people in it, including my aunt, and especially my mom.
- Toby
(#24557)
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Posted on: Tue May 19, 2015 9:42am
I have IBS (irritable bowel syndrome) and have had it since I was 14. Going through high school with it is no fun, especially when you end up going to a school that hates students leaving a classroom for any reason. It was awful in the beginning simply because I didn't know why my gut felt like it was being ripped to shreds. My teachers never wanted to let any student leave to go to the bathroom so I'd get super sick just having to hold it. Eventually the school allowed me to have bathroom breaks, but then other students would tease or bully me about it. It sucks because I never thought I could feel so self consciousness about doing something like going to the bathroom. Especially since everyone has to go to the bathroom. It can be embarrassing going out to places with friends and having it act up and then spending a lot of time living in the bathroom. Even if I stay away from trigger foods it can still go off anytime. I feel sad reading that others here also have had problems with other people. I'm so happy there is an awareness about this. Maybe if more people knew about it, others could tray the people with these problems better. *hugs everyone*
- pasha
(#22059)
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Posted on: Tue May 19, 2015 10:34am
IBD sounds terrible to have to cope with. I really didn't know much about it until now so thank you for bringing attention to it. I'll be sure to wear the clip today in support of those suffering.
- Shh
(#67502)
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Posted on: Tue May 19, 2015 10:40am
Thanks for this post.
I am sorry for those who have to go through this. I don't know specifically how you feel but my roommate has this and I know enough of the struggle. It's tough. I hope those who joke about IBD would stop as you have no idea, it's not funny in anyway.
Again thanks for this post, glad to know there is a day for IBD.
- ♎ Astra ♎
(#16365)
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Posted on: Tue May 19, 2015 10:44am
I think I have one of the IBDs... Doctors have said maybe so but I'm not diagnosed yet. All I know is that eating used to be a joy and now I can't tolerate gluten, dairy, etc... :-X I miss pancakes, pizza, bagels, ice cream, McDonald's Big Breakfast, eating at IHOP, milkshakes, etc. but I don't miss all the awful symptoms that come with not carefully regulating my diet. -_-
It's gotten to the point where I don't feel like a normal person anymore.
- ♎ Astra ♎
(#16365)
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Posted on: Tue May 19, 2015 10:48am
I should add that anyone who has IBD/IBS should have their Vitamin D level checked. I don't know if it was a cause of my health decline, but it sure couldn't have helped that my level went down to 5 ng/ml last year... the minimum anyone should have is 30 ng/ml, though a better target is somewhere over 50 ng/ml. I'm personally aiming 60-70 ng/ml... I've been working at it for over a year and I'm over 30 ng/ml.
My energy level is better and I can function more like a normal person, but I still can't eat gluten (it's in wheat... so any bread, pastry, etc. product), dairy, etc. I guess more testing and diagnosing is necessary...
Posted on: Tue May 19, 2015 8:14am
one of my best friends has ulcerative colitis, i didn't know they had an awareness day for the disease. He is 24 and sufferes badly from it. I will defently get one of these in his honor.